The ‘Why’ of it all

As you know, I suffer Rheumatoid Arthritis. This disease has controlled significant parts of my life since 1997 and through a lot of awful, forced life changing experiences coping with it, I have decided it is time to do the impossible. Eradicate this awful disease from my body. I have had so many operations, IContinue reading “The ‘Why’ of it all”

Oncologist Appointment

September  11th,  2007 I  know  this  is  going  to  be  a  bad  day.  Today  I  brought  my  Sister  and  Boyfriend  and  my  good  friend  with  me  as  support. The  Oncologist  had  a  quietness  about  her  I  didn’t  like.  She  said  things  are  not  good,  showed  me  the  scans  which  I  seriously  couldn’t  decipher  good  from Continue reading “Oncologist Appointment”

An Email to my Surgeon

August 17th 2007 Hi  Gary, Just  to  let  you  know,  my  oncologist  has  arranged  for  me  to  have  a  C.T.  scan  early  September  so  you  will  have  the  report  and  everything  when  I  visit  you  on  the  25th  September. Also  I  have  been  curious  –  yup  “in  the  middle  of  the  night  scary  dark  thoughts” Continue reading “An Email to my Surgeon”

Recapping July

I  have  had  the  most  horrific  two  weeks  off  my  life  with  Mum  being  in  I.C.U,  H.D.U.  and  only  now  stable  on  Ward  6  in  the  last  two  days  including  amputation  of  her  leg.  On  the  last  day  of  my  chemo,  Mum  was  in  H.D.U,  I  took  my  pole  with  saline  and  magnesium,  and  walked Continue reading “Recapping July”

26th June 2007

The  last  round  of  chemo  was  god  awful  and  have  suffered  a  week  of  ulcers  and  then  digging  myself  out  of  that  hole  and  my  blood  count  –  hemoglobin  is  87  which  is  close  to  a  transfusion  point,  has  made  me  very  weak,  and  just  doing  a  simple  task,  exhausts  me,  it  is  as  if Continue reading “26th June 2007”

First Cycle of Chemo – Chondroblastic Osteosarcoma

I am in hospital and have almost finished all my chemo (first cycle) and wow, it has been an action packed week. 10am Monday (26th Feb 07) with oncologist, 1.00pm check into ward 25, 3.30 started me on fluids (to protect my kidneys) and then 5.15pm into thee big bad chemo. God, they gave meContinue reading “First Cycle of Chemo – Chondroblastic Osteosarcoma”

The Worst phone call Ever ~ February 22nd 2007

Well I got the bad news on Tuesday having being told I have a cancerous tumour called a Chondroblastic Osteosarcoma and have an appointment with my oncologist on Monday – all very scary now.  I will be glad to get some action happen real soon. Just going through all the HR stuff at work andContinue reading “The Worst phone call Ever ~ February 22nd 2007”